Showing posts with label Pseudotumor Cerebri. Show all posts
Showing posts with label Pseudotumor Cerebri. Show all posts

Thursday, May 14, 2009

Visual Field Test

I am having my 2nd visual field test a little late. I was supposed to have one as soon as my vision returned to normal in February 2008, but I neglected it... and then I was supposed to have yearly tests to make sure my blind spots are not increasing. So boo I have not done my part, but I figured I am moving in a month and would like to see the doctor who diagnosed me with PTC and see how my eyes are doing.

No matter what my eyes will be better than they were when I had my first test done, but I am curious to see if they are in a good range or if my blind spots are bigger than they should be. Lets pray for good eyes. This is all important because visual blindness can creep up without much knowledge until its too late to reverse the damage.

If you have never had a visual field test, the best description is that it feels like you are looking into the Willy Wonka TV Room... You are looking into a big white box and tiny lights flash for about 30 minutes and you push a button as to which ones you see... its extremely tedious and boring!

Thursday, January 15, 2009

Happy 1 year anniversary Pseudotumor, I still hate you!

Thanks for the memories... but can we break up now?!

Wednesday, January 30, 2008

A De-Caffinated Life


That right their, that little drawing, its been a friend to me for the past 8 years I would guess. I have never in that time quite drinking it. I have transitioned of its origin (regular to diet) but never have I stopped.

Well its been 2 weeks now and I have not been able to drink a single carbonated beverage due to the medication I am on (it makes it taste like rusted metal burning my thoat).

I kind of miss caffeine, but in general, I feel better. Bonus, I drink water now!

Tuesday, January 22, 2008

Off to work I go

So I decided even thou my eyes are shot to hell and I feel like crap... I HAVE TO GO BACK TO WORK! I have been out for almost a week and a half and am doing a lot better. I have to stop being a baby and get out of my house. TONS OF PEOPLE ARE ACTUALLY BLIND AND THEY GO TO WORK! I am just having a tough time adjusting to my new vision impairment. Driving is not a possibility and walking on the ice makes me look like a clown cause I can't see which spots actually have ice or are just the ghost image of what I am really seeing. BLAH!

So goal is go get a bus pass... and force myself to work!

Sunday, January 20, 2008

Medical Mysteries are fun and games!

So after weeks of horrible migraine headaches and neck pain, and numerous doctors telling me that I am A) too stressed B) dehydrated and C) developing migraines... I was at a loss for words. We went to the ER two Wednesday's ago and they sent us home with pain meds (which didn't help the pain) and a note saying that they didn't believe anything serious was causing my pain. So basically I am a stressed out dehydrated girl developing migraines for the first time in her life. All of which still may be true.

I had suffered through Christmas break with migraines and a car wreck but then all of a sudden about a week ago, I got double vision! Ever crossed your eyes and have your parents tell you that if you do that too much it will get stuck... well mine got stuck around age 21! I was having a fit. That was the final straw... that was the "something must be really wrong here." Dan's mom called their eye doctor and he talked to me on Sunday and got me to come into his office the next morning. After running a bunch of tests and looking at my eyes he told me that my optic nerves were swollen and that I most likely had something called "Idiopathic Intercranial Hypertension" aka a Pseudotumor. Ever heard of it? No? Neither had I.

Well a million doctor's later, a spinal tap and a nice hour and a half MRI tell me that yep I have Idiopathic Intercranial Hypertension. Basically my body is behaving as if I have a brain tumor but their is no tumor their, silly body, quit trying to kill me, its not a tumor!!

I am exhausted, and thankfully after almost a full week I can say my vision is improving, my taste buds are ruined due to the medication and diet coke taste like battery acid, and I will soon be on the road to better health.

This week my plans are to: go back to work, go back to school, and not lose my eye sight!